04135cam a2200349 i 4500 986937925 TxAuBib 20230928120000.0 220923s2023||||||||||||||||||||||||eng|u 9781421445984 pbk. Oclc: #1337523051 $19.95 1421445980 pbk. Oclc: #1337523051 $19.95 TxAuBib rda Kanarek, Robin B. Living well with a serious illness : a guide to palliative care for mind, body, and spirit / Robin Bennett Kanarek. Baltimore : Johns Hopkins University Press, 2023. 209 pages ; 23 cm. txt rdacontent n rdamedia nc rdacarrier Johns Hopkins Press health book, A Includes bibliographical references (pages 189-199) and index. Introduction: David's story -- 1. What is palliative care? -- 2. Barriers to palliative care: taking care of the person versus fighting the disease -- 3. How we want to die: palliative care's benefits for patients and their loved ones -- 4. How to get the care you want: knowing what to ask for, what to expect, and what to demand -- 5. How to cope when illness changes everything: quality-of-life care includes the family -- 6. Putting it all together: creating an action plan for when the end is near -- 7. Spirituality and well-being: care of the spirit matters too -- 8. Grief: tapping into restorative sources after goodbye -- 9. Making palliative care mainstream: what legislators, philanthropists, educators, and you can do -- Epilogue: David's legacy: the Kanarek Family Foundation. "This book was written to educate individuals diagnosed with a serious medical condition along with their loved ones about the importance of palliative care. The work outlines what palliative care is, provides communication strategies for getting the type of support and care that you want and need (and not just medications), outlines successful coping strategies, and discusses family dynamics, grieving, emotional support, and spirituality. Although palliative care is often associated with hospice and end-of-life planning, the author argues for a more expanded definition that includes improved quality of life at early as well as later stages of the disease process"-- Provided by publisher. "A practical guide for understanding how palliative care can improve quality of life for patients and their caregivers.Robin Bennett Kanarek was a registered nurse working with patients suffering from chronic medical conditions when her ten-year-old son was diagnosed with leukemia. As her son endured grueling treatments, Robin realized how often medical professionals overlook critical psychological, emotional, and spiritual support for people with life-threatening illnesses. Living Well with a Serious Illness is the culmination of decades of Robin's work to advance the field of palliative care.Although palliative care is often associated with hospice and end-of-life planning, Kanarek argues for a more expanded definition that incorporates palliative care earlier in patients' journeys. Living Well with a Serious Illness helps patients and their caregivers understand what palliative care entails how to access the support they need when going through a serious illness what questions to ask medical professionals how to navigate advanced care planning definitions of common terminology used with end-of-life planning the importance of spiritual care, coping strategies, and emotional support how to become an advocate for palliative careThis book illuminates the importance of seeing patients as individuals who can benefit from care for their body, mind, and spirit-the core tenet of palliative care"-- Provided by publisher. 20230928. Terminal Care. Palliative treatment. Death. Families of the terminally ill Psychology. A Johns Hopkins Press health book.